This report was prompted by our concern that patients and their clinicians are not always able to access medicines for those with rare diseases. The ongoing reforms to the NHS and development of a strategy for rare disease offer an opportunity to explicitly consider access to medicines for those with orphan or ultra-orphan conditions. read on Orphan Medicines: Special treatment required?
Our report examines the scope and potential benefits of both Record Access and the PHR. It appraises current patient attitudes toward online health record access, both in theory and in practice, and identifies fundamental prerequisites for the mass uptake of such services. read on Personal Health Records - Putting patients in control?
2020health has undertaken a review of the commissioning of cancer care with particular reference to the rarer cancers. This report, examines the role that cancer networks play in this new landscape, identifies important strengths and weaknesses in the new commissioning arrangements and offers recommendations for future consideration.
The UK still has one of the worst cancer survival rates in the OECD. Despite spending £5.8bn on cancer care in 2010, the NHS offers poor cancer survival rates compared to Europe, Canada, Australia and many Scandinavian countries. read on Cancer Commissioning: Making the reforms work for patients
This report investigates NHS spend on translation services, the overall costs as well as the individual areas of spend. Research was conducted by 2020health through Freedom of Information (FOI) requests sent to 247 NHS Trusts. read on Lost in translation
This 2020health White Paper builds on our recent report “HealthCare without Walls: A Framework for delivering telehealth at scale” to explore lessons learnt at the world's largest user of telehealth services: the US Veterans Health Administration (VHA). This short paper explores what the NHS and the US VHA could learn from one another in their implementation and development of telehealth, and to highlight the essentials for success. read on Telehealth